Publications
Explore our research findings and contributions to understanding stress and health in autistic teens and young adults. Our work is grounded in community-based participatory research.
Aligning Biomedical Research With Neurodiversity to Support the Metabolic Health of Autistic Individuals
Obesity Science & Practice
Autistic individuals represent approximately 1 in 31 people in the United States and experience disproportionately high rates of obesity, type 2 diabetes, cardiovascular disease, and feeding and eating challenges, alongside reduced life expectancy. However, evidence‐based metabolic health interventions for autistic populations remain sparse. This Perspective synthesizes evidence on two interconnected barriers that limit metabolic health research in the autism field: (1) lack of accessible biomedical research methodologies and (2) insufficient attention to mechanisms underlying poor metabolic health in this population, including chronic stress and weight stigma. Drawing on principles from neurodiversity, Universal Design for Research, and the Academic Autism Spectrum Partnership in Research and Education (AASPIRE) guidelines, we outline a neuro‐affirming paradigm that can improve metabolic health research in the autism field. Finally, we provide phase‐by‐phase practical recommendations for researchers, spanning study design, measure development, recruitment, consent, screening, data collection, and interpretation. Aligning metabolic health research with neuro‐affirming principles can generate more rigorous, representative, and ethically grounded evidence and ultimately support more meaningful improvements in metabolic health and overall well‐being for autistic individuals across the life course.
Separating Fact From Fiction: The Truth About Autism
Viewpoints Radio
Misinformation about autism isn’t new—but it’s gaining traction in dangerous ways. This week, we confront the myths head-on, exploring what autism really is (and what it isn’t) and why political language and policy matter. Experts Kristyn Roth and Dr. Emily Hotez share what the latest science tells us.
We need a new kind of autism research — work that’ll actually help austistic people | Opinion
Houston Chronicle
In this opinion piece, Drs. Emily Hotez and Alice Kuo argue that autism research funding has been disproportionately directed toward identifying causes rather than improving outcomes for autistic individuals and their families.
For the Love of Rachel
U Magazine
In this interview, developmental psychologist Dr. Emily Hotez discusses how stigma and implicit bias contribute to health care disparities experienced by individuals with intellectual and developmental disabilities (IDDs).
Using a life course health development framework to combat stigma-related health disparities for individuals with intellectual and/or developmental disability (I/DD)
Current Problems in Pediatric and Adolescent Health Care
This study explored how college students understand and feel about autism and neurodiversity, and whether higher education can help reduce stigma as autistic students transition into adulthood. Most students expressed high overall acceptance of autistic people, but views were more mixed when it came to whether autistic behaviors should be changed or treated. Students also showed strong interest in neurodiversity, alongside wide differences in how much they knew about it. These findings suggest colleges have an important opportunity to build on students’ interest and promote more informed, stigma-reducing campus environments.
Health and Well-Being at the Transition to Adulthood Among Individuals With Disabilities: An Analysis of the Panel Study of Income Dynamics
Journal of Adolescent Health
This study followed young adults with disabilities from ages 18 to 28 to understand how their mental well-being (“flourishing”) and overall health change over time. Compared with their peers without disabilities, young adults with developmental or learning disabilities, ADHD, and speech or vision impairments reported lower well-being and poorer health. Young adults with ADHD and developmental or learning disabilities often faced the greatest challenges, and their health and well-being followed different patterns over time. These findings highlight the need for targeted supports during the transition to adulthood to promote better health and well-being for young people with disabilities.
Brief research report: Investigating neurodiversity acceptance in the college classroom: an exploratory study
Frontiers in Education
In the United States, about 1 in 6 children has an intellectual and/or developmental disability (I/DD). Across childhood, adolescence, and adulthood, people with I/DD experience worse health outcomes than the general population. One important and preventable reason for these disparities is stigma—negative attitudes, stereotypes, and discrimination that occur in schools, healthcare settings, communities, and public policy. This article discusses how preventing stigma can improve the health of people with I/DD across the lifespan.